“Ectopia cordis occurs when a portion or all of a baby’s heart is located outside of the chest cavity. In true ectopia cordis, the heart almost always has internal abnormalities aside from just the abnormal location. At the Colorado Fetal Care Center at Children’s Hospital Colorado, we work with expectant mothers and families to diagnose this severe cardiac defect.

Babies with ectopia cordis are born with their hearts partially or completely outside of their bodies. There are usually other organ structures that also develop abnormally. Ectopia cordis often coexists with additional heart defects as well as abdominal wall defects.” Read More

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We will be adding more information in the future. Have questions or looking for guidance regarding a life-limiting diagnosis? Contact us here.